Krista Harrison & Alexander Smith Publish Poetic Analysis of End-of-Life Caregiving in JAGS: Insights on Dementia Subtypes & Caregiver Experiences

Krista Harrison, PhD and Alexander Smith, MD, MPH, MS published "By the Time We Knew …”: Poetic Analysis of End-of-Life Caregiving Experiences for Rapidly Progressive and Slower-Duration Dementia Syndromes in JAGS. This secondary qualitative analysis compares end-of-life experiences for caregivers of decedents with different dementia subtypes. It includes 10 poems whittled from interview transcripts and a new conceptual model of dementia end-of-life experience. The interdisciplinary team includes former MSTAR students, postdocs, GBHI Atlantic Fellows fellows, and faculty colleagues across UCSF and the US.