Using Qualitative Research in Applied Clinical Research
Qualitative research methodologies enable researchers to explore a diverse range of topics that provide valuable insights into various healthcare and caregiving contexts where quantitative data is unavailable. Researchers can uncover nuanced perspectives, experiences, and meanings that contribute to a deeper understanding of complex issues in healthcare. Qualitative findings can complement quantitative work, inform development of hypotheses, and be part of development or evaluation of clinical interventions. These publications showcase Dr. Harrison’s application of qualitative methods in understanding patient/family experiences with dementia, palliative care needs, clinician perspectives on addressing needs, healthcare resource allocation, and more.
First Author
- Harrison KL, Garrett SB, et al. "I Didn't Sign Up for This": Perspectives from Persons Living with Dementia and Care Partners on Challenges, Supports, and Opportunities to Add Geriatric Neuropalliative Care to Dementia Specialty Care
- Harrison KL, Allison TA, et al. "Hospice Staff Perspectives on Caring for People with Dementia: A Multisite, Multistakeholder Study"
- Harrison KL, Garrett SB, et al. "Developing neuropalliative care for sporadic Creutzfeldt-Jakob Disease."
- Harrison KL, Taylor HA, et al. "Action Guide for Addressing Ethical Challenges of Resource Allocation within Community-Based Healthcare Organizations." (dissertation)
- Harrison KL, Taylor HA. "Organizational values in the provision of access to care for the uninsured." (dissertation)
- Harrison KL, Taylor HA. "Healthcare resource allocation decisions affecting uninsured services." (dissertation)
Senior Author
Advance Care Planning and Hospice:
- Hunt LJ, Garrett SB, et al. "'Goals of Care Conversations Don't Fit in a Box': Hospice Staff Experiences and Perceptions of Advance Care Planning Quality Measurement."
- Oh A, Allison TA, et al. "Front-Line Hospice Staff Perceptions of Barriers and Opportunities to Discussing Advance Care Planning With Hospice Patients and Their Families."
- Dressler G, Garrett SB, et al. '"It's Case by Case, and It's a Struggle”: A Qualitative Study of Hospice Practices, Perspectives, and Ethical Dilemmas When Caring for Hospice Enrollees with Full-Code Status or Intensive Treatment Preferences."
Older Adult and Caregiver Experiences and Perspectives:
- Growdon ME, Hunt LJ, Miller MJ, Halim M, Karliner LS, Gonzales R, Sudore RL, Steinman MA, Harrison KL. eConsultation for Deprescribing Among Older Adults: Clinician Perspectives on Implementation Barriers and Facilitators.
- Kotwal A, Allison TA et al. "'Relationships, Very Quickly, Turn to Nothing': Loneliness, Social Isolation, and Adaptation to Changing Social Lives Among Persons Living With Dementia and Care Partners."
- Radcliffe KG, Halim M, et al. "Care Setting Transitions for People With Dementia: Qualitative Perspectives of Current and Former Care Partners."
- England AE, Ritchie CS, et al. "Attitudes of Homebound Older Adults and Their Caregivers Toward Research and Participation as Research Advisors."
- Shafir A, Ritchie CS, et al. "'Captive by the Uncertainty'-Experiences with Anticipatory Guidance for People Living with Dementia and Their Caregivers at a Specialty Dementia Clinic."
Collaborations
Care at Home/Homeboundness:
- Sheehan OC, Ritchie CS, et al. "Unanticipated Therapeutic Value of the Patient-Centered Outcomes Research Institute (PCORI) Stakeholder Engagement Project for Homebound Older Adults."
- Mickler AK, Leff B, et al. "Understanding the Daily Experiences and Perceptions of Homebound Older Adults and Their Caregivers: A Qualitative Study."
- Leff B, Sheehan OC, et al. "A Home-Based Care Research Agenda by and for Homebound Older Adults and Caregivers."
Care Ecosystem:
- Bernstein A, Merrilees J, et al. "Using care navigation to address caregiver burden in dementia: A qualitative case study analysis."
- Bernstein A, Harrison KL, et al. "The Role of Care Navigators Working with People with Dementia and Their Caregivers."
- Bock MA, Macchi ZA, et al. "Does a novel community-based outpatient palliative care intervention for Parkinson’s disease and related disorders improve care? Qualitative results from patients and care partners."
- Verma A, Smith AK, et al. "Ethical Challenges in Caring for Unrepresented Adults: A Qualitative Study of Key Stakeholders."
Dementia:
- Bernstein Sideman A, Gilissen J, et al. "Caregiver Experiences Navigating the Diagnostic Journey in a Rapidly Progressing Dementia."
- Allison TA, Gubner JM, et al. "Meaningful Activities and Sources of Meaning for Community-Dwelling People Living with Dementia."
- Bernstein Sideman A, Harrison KL, et al. "Practices, challenges, and opportunities when addressing the palliative care needs of people living with dementia: Specialty memory care provider perspectives."
- Casey JJ, Harrison KL, et al. "An integrative group movement program for people with dementia and care partners together (Paired PLIE): initial process evaluation."